Engelberg Ruth, Downey Lois, Curtis J Randall
Department of Medicine, Division of Pulmonary and Critical Care Medicine, University of Washington, Seattle, 98104, USA.
J Palliat Med. 2006 Oct;9(5):1086-98. doi: 10.1089/jpm.2006.9.1086.
The importance of good clinician-patient communication to quality end-of-life care has been well documented yet there are no validated measures that allow patients to assess the quality of this communication. Using a sample of hospice patients (n = 83) and patients with chronic obstructive pulmonary disease (COPD) (n = 113), we evaluated the psychometric characteristics of a 13-item patient-centered, patient-report questionnaire about the quality of end-of-life communication (QOC). Our purpose was to explore the measurement structure of the QOC items to ascertain if the items represent unitary or multidimensional constructs and to describe the construct validity of the QOC score(s). Analyses included: principal component analyses to identify scales, internal consistency analyses to demonstrate reliability, and correlational and group comparisons to support construct validity. Findings support the construction of two scales: a six-item "general communication skills" scale and a seven-item, "communication about end-of-life care" scale. The two scales meet standards of scale measurement, including good factor convergence (values >or= 0.63) and discrimination (values different >or= 0.25), percent of variance explained (69.3%), and good internal consistency (alpha >or= 0.79). The scales' construct validity is supported by significant associations (p <or= 0.01) with items assessing overall quality of doctor communication and quality of care, number and type of end-of-life discussions, and doctor's awareness of patient's treatment preferences. The general communication skills scale correlates more strongly with the general communication items while the communication about end-of-life care scale correlates more strongly with items addressing end-of-life topics. While further validation studies are needed, this assessment of the QOC represents an important step toward providing a measure of the quality of end-of-life communication.
良好的医患沟通对优质临终关怀的重要性已有充分记录,但目前尚无经过验证的措施让患者评估这种沟通的质量。我们以一组临终关怀患者(n = 83)和慢性阻塞性肺疾病(COPD)患者(n = 113)为样本,评估了一份以患者为中心的、包含13个项目的关于临终沟通质量(QOC)的患者报告问卷的心理测量特征。我们的目的是探索QOC项目的测量结构,以确定这些项目代表单一结构还是多维结构,并描述QOC分数的结构效度。分析包括:主成分分析以识别量表,内部一致性分析以证明信度,以及相关性分析和组间比较以支持结构效度。研究结果支持构建两个量表:一个包含六个项目的“一般沟通技巧”量表和一个包含七个项目的“关于临终关怀的沟通”量表。这两个量表符合量表测量标准,包括良好的因子收敛(值≥0.63)和区分度(值差异≥0.25)、解释的方差百分比(69.3%)以及良好的内部一致性(α≥0.79)。量表的结构效度得到了与评估医生沟通总体质量和护理质量、临终讨论的数量和类型以及医生对患者治疗偏好的知晓情况的项目之间显著关联(p≤0.01)的支持。一般沟通技巧量表与一般沟通项目的相关性更强,而关于临终关怀的沟通量表与涉及临终话题的项目相关性更强。虽然还需要进一步的验证研究,但对QOC的这种评估是朝着提供一种衡量临终沟通质量的方法迈出的重要一步。