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癌症患者居家姑息治疗的障碍:一项关于照护者观点的定性研究

Barriers to home-based palliative care in people with cancer: A qualitative study of the perspective of caregivers.

作者信息

Hassankhani Hadi, Rahmani Azad, Best Amy, Taleghani Fariba, Sanaat Zohreh, Dehghannezhad Javad

机构信息

Center of Qualitative Studies School of Nursing and Midwifery Tabriz University of Medical Sciences Tabriz Iran.

Medical-Surgical Department Nursing & Midwifery Faculty Tabriz Iran.

出版信息

Nurs Open. 2020 Apr 22;7(4):1260-1268. doi: 10.1002/nop2.503. eCollection 2020 Jul.

DOI:10.1002/nop2.503
PMID:32587746
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC7308678/
Abstract

AIM

To investigate the barriers to home-based palliative care for cancer patients from professional caregivers' experiences.

DESIGN

A qualitative study.

METHOD

This is a descriptive-qualitative study carried out in the community-based care. Twenty-three participants took part in this study. Data were collected through semi-structured interviews.

RESULTS

Data analysis led to the identification of three category of barriers including the lack of instructions (the lack of clinical practice guidelines, the ambiguity of tariffs and the lack of insurance coverage), family desperation (family views of prognosis, distrust and poverty) and lack of professionalism (limited knowledge, the use of amateur nurses and siloed care). Developing a care protocol and providing resources support contribute to the development of home-based palliative care. Moreover, the education of families and training courses for nurses must be fostered.

摘要

目的

从专业护理人员的经验出发,调查癌症患者居家姑息治疗的障碍。

设计

一项定性研究。

方法

这是一项在社区护理中开展的描述性定性研究。23名参与者参与了本研究。数据通过半结构化访谈收集。

结果

数据分析得出三类障碍,包括缺乏指导(缺乏临床实践指南、收费不明确以及缺乏保险覆盖)、家庭绝望(家庭对预后的看法、不信任和贫困)以及缺乏专业性(知识有限、使用业余护士和护理分散)。制定护理方案并提供资源支持有助于居家姑息治疗的发展。此外,必须加强对家庭的教育和护士培训课程。

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本文引用的文献

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Where there is no nurse: an observational study of large-scale mentoring of auxiliary nurses to improve quality of care during childbirth at primary health centres in India.在没有护士的地方:一项关于对辅助护士进行大规模指导以提高印度初级卫生中心分娩护理质量的观察性研究。
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Overcoming Barriers to Growth in Home-Based Palliative Care.克服居家姑息治疗中的增长障碍。
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Facilitators and Barriers to Interdisciplinary Communication between Providers in Primary Care and Palliative Care.促进和阻碍初级保健与姑息治疗提供者之间跨学科交流的因素。
J Palliat Med. 2019 Mar;22(3):243-249. doi: 10.1089/jpm.2018.0231. Epub 2018 Nov 1.
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Estimating the global cancer incidence and mortality in 2018: GLOBOCAN sources and methods.估算 2018 年全球癌症发病率和死亡率:GLOBOCAN 来源和方法。
Int J Cancer. 2019 Apr 15;144(8):1941-1953. doi: 10.1002/ijc.31937. Epub 2018 Dec 6.
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Assessing nursing assistants' competency in palliative care: An evaluation tool.评估护理助理在姑息治疗方面的能力:一种评估工具。
Nurse Educ Pract. 2018 Nov;33:70-76. doi: 10.1016/j.nepr.2018.09.001. Epub 2018 Sep 17.
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Global cancer statistics 2018: GLOBOCAN estimates of incidence and mortality worldwide for 36 cancers in 185 countries.全球癌症统计数据 2018:GLOBOCAN 对全球 185 个国家/地区 36 种癌症的发病率和死亡率的估计。
CA Cancer J Clin. 2018 Nov;68(6):394-424. doi: 10.3322/caac.21492. Epub 2018 Sep 12.
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Barriers and facilitators to implementation of cancer treatment and palliative care strategies in low- and middle-income countries: systematic review.中低收入国家实施癌症治疗和姑息治疗策略的障碍和促进因素:系统评价。
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