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危机带来创新策略:COVID-19 封锁期间残疾儿童的协作共情远程干预。

Crisis Brings Innovative Strategies: Collaborative Empathic Teleintervention for Children with Disabilities during the COVID-19 Lockdown.

机构信息

Division of Medical Sciences, University of Victoria, Victoria, BC V8W 2Y2, Canada.

Department of Special Education and Multiple Abilities, The University of Alabama, Tuscaloosa, AL 35405, USA.

出版信息

Int J Environ Res Public Health. 2021 Feb 11;18(4):1749. doi: 10.3390/ijerph18041749.

DOI:10.3390/ijerph18041749
PMID:33670163
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC7916822/
Abstract

While coronavirus disease 2019 (COVID-19) continues to spread across the globe, public health strategies-including the social distancing measures that many countries have implemented- have caused disruptions to daily routines. For children with disabilities and their families, such measures mean a lack of access to the resources they usually have through schools and habilitation or rehabilitation services. Health emergencies, like the current COVID-19 pandemic, require innovative strategies to ensure continuity of care. The objective of this perspective paper is to propose the adoption of two innovative strategies for teleintervention. The novel strategies include: (1) to apply the principles of the Routines-Based Model beyond the early years of development, and (2) to adopt My Abilities First-which is a novel educational tool promoting an abilities-oriented approach in healthcare encounters. In the context of COVID-19, and using accessible language, the content of the paper highlights what is important for families and individuals with disabilities, and how the proposed novel strategies could be useful delivering remote support. The principles of the Routines-Based Model and My Abilities First are universal and facilitate collaborative, empathic, family-centered teleintervention for children and youth with disabilities during and post the COVID-19 lockdown.

摘要

虽然 2019 年冠状病毒病(COVID-19)继续在全球范围内传播,但包括许多国家实施的社交距离措施在内的公共卫生策略已经打乱了日常生活。对于残疾儿童及其家庭来说,这些措施意味着他们无法像往常一样通过学校和康复或康复服务获得所需的资源。像当前 COVID-19 大流行这样的卫生紧急情况需要创新的策略来确保护理的连续性。本文的目的是提出采用两种远程干预的创新策略。新颖的策略包括:(1)将基于常规的模式原则应用于发展早期之后,以及(2)采用 My Abilities First-这是一种新颖的教育工具,在医疗保健中促进以能力为导向的方法。在 COVID-19 背景下,本文使用通俗易懂的语言,强调了对残疾家庭和个人重要的内容,以及所提出的新颖策略如何在远程支持中发挥作用。基于常规的模式和 My Abilities First 的原则是通用的,可以促进残疾儿童和青少年在 COVID-19 封锁期间和之后进行协作、共情、以家庭为中心的远程干预。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/635a/7916822/526d671776a2/ijerph-18-01749-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/635a/7916822/526d671776a2/ijerph-18-01749-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/635a/7916822/526d671776a2/ijerph-18-01749-g001.jpg

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[Telerehabilitation of Subjects with Neurodevelopmental Disorders During Confinement due to COVID-19].

本文引用的文献

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The Routines-Based Model Internationally Implemented.基于惯例的模式在国际上的实施。
Int J Environ Res Public Health. 2020 Nov 10;17(22):8308. doi: 10.3390/ijerph17228308.
2
MY ABILITIES FIRST: Positive language in health care.我的能力优先:医疗保健中的积极语言。
Clin Teach. 2020 Jun;17(3):272-274. doi: 10.1111/tct.13164. Epub 2020 Apr 28.
3
Mental health effects of school closures during COVID-19.新冠疫情期间学校关闭对心理健康的影响。
[新冠疫情居家隔离期间神经发育障碍患者的远程康复治疗]
Rev Colomb Psiquiatr. 2022 May 17. doi: 10.1016/j.rcp.2022.03.003.
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Parents' views of special education services during COVID-19.新冠疫情期间家长对特殊教育服务的看法。
Int J Educ Res. 2022;112:101941. doi: 10.1016/j.ijer.2022.101941. Epub 2022 Feb 4.
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[Child disability in a changing world: a human rights approach].[不断变化的世界中的儿童残疾问题:一种人权视角]
Rev Fac Cien Med Univ Nac Cordoba. 2021 Jun 28;78(2):95-96. doi: 10.31053/1853.0605.v78.n2.32550.
6
Introduction to the Special Issue on Early Child Development: From Measurement to Optimal Functioning and Evidence-Based Policy.幼儿早期发展特刊引言:从测量到最佳功能与循证政策
Int J Environ Res Public Health. 2021 May 13;18(10):5154. doi: 10.3390/ijerph18105154.
Lancet Child Adolesc Health. 2020 Jun;4(6):421. doi: 10.1016/S2352-4642(20)30109-7. Epub 2020 Apr 14.
4
COVID-19, school closures, and child poverty: a social crisis in the making.新冠疫情、学校停课与儿童贫困:一场正在形成的社会危机。
Lancet Public Health. 2020 May;5(5):e243-e244. doi: 10.1016/S2468-2667(20)30084-0. Epub 2020 Apr 8.
5
The human rights of children with disabilities during health emergencies: the challenge of COVID-19.残疾儿童在卫生紧急情况下的人权:COVID-19 的挑战。
Dev Med Child Neurol. 2020 Jun;62(6):661. doi: 10.1111/dmcn.14526. Epub 2020 Mar 30.
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Collaborative Home-Visit Program for Young Children With Motor Delays in Rural Taiwan: A Pilot Randomized Controlled Trial.协作式家访计划对农村地区运动发育迟缓幼儿的影响:一项试点随机对照试验
Phys Ther. 2020 Jun 23;100(6):979-994. doi: 10.1093/ptj/pzaa033.
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Focus on functioning: let's apply the ICF model.关注功能:让我们应用国际功能、残疾和健康分类模型。
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A randomized controlled trial of routines-based early intervention for children with or at risk for developmental delay.基于常规的早期干预对有或有发育迟缓风险的儿童的随机对照试验。
Res Dev Disabil. 2013 Oct;34(10):3112-23. doi: 10.1016/j.ridd.2013.06.037. Epub 2013 Jul 22.
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Disability and the training of health professionals.残疾与卫生专业人员的培训
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