Nguyen Amy D, Dodds Laura, Ludlow Kristiana, Baysari Melissa, Comi Rosa, Zheng Wu Yi, Westbrook Johanna I
Centre for Health Systems and Safety Research, Australian Institute of Health Innovation, Macquarie University, Sydney, NSW, 2109, Australia.
St Vincent's Clinical Campus, UNSW Sydney, Sydney, NSW, Australia.
BMC Geriatr. 2024 Dec 4;24(1):993. doi: 10.1186/s12877-024-05581-2.
Little is known about the information needs of older people and their family caregivers, particularly around medication management. This is largely because this population are infrequently consulted in research. Health technologies such as digital dashboards can present comprehensive and timely data summaries to improve knowledge and guide decision-making.
The aim of this study was to understand current information seeking-behaviours of aged care service users and their families, and their preferences for the presentation of these types of information to support the co-design of a digital aged care dashboard.
Aged care clients (community and residential aged care) and their family members were invited to participate in semi-structured, one-on-one interviews conducted over the telephone. The interviews explored how participants sought health information, how this information supported their clinical decision-making, and how they would want this information to be presented via a digital dashboard. Interviews were audio-recorded, transcribed verbatim and independently analysed using an inductive content approach by three reviewers to identify prominent categories.
Aged care clients and family members sought health information from healthcare providers, aged care facilities and the Internet. Information regarding medications, medical conditions and an overview for family members were of particular importance to participants. Participants saw the usefulness of a digital dashboard displaying relevant information, and provided suggestions regarding presentation of this information. This included the use of large text, representative colours, symbols and graphs. Participants recommended being able to tailor the dashboard to individual end-users.
By engaging aged care clients and their families in research, it was found that they had positive views about a digital dashboard that presented clinical information and was readily accessible. Such a dashboard could complement their current practices of information-seeking. However, for the dashboard to be effective for this population, several suggestions for its design were raised. Understanding the information-seeking behaviours of aged care clients and their families, together with knowledge of the information that is important to them, and then subsequent incorporation of this information into a digital dashboard that reflects their design preferences, could lead to more informed decision-making in this population.
对于老年人及其家庭护理人员的信息需求，尤其是围绕药物管理方面，人们了解甚少。这主要是因为该人群在研究中很少被咨询。诸如数字仪表盘之类的健康技术可以提供全面且及时的数据摘要，以增进知识并指导决策。
本研究的目的是了解老年护理服务使用者及其家人当前的信息寻求行为，以及他们对这类信息呈现方式的偏好，以支持数字老年护理仪表盘的协同设计。
邀请老年护理客户（社区和机构养老）及其家庭成员参与通过电话进行的半结构化一对一访谈。访谈探讨了参与者如何寻求健康信息、这些信息如何支持他们的临床决策，以及他们希望如何通过数字仪表盘呈现这些信息。访谈进行了录音，逐字转录，并由三位评审员使用归纳性内容分析法进行独立分析，以确定突出的类别。
老年护理客户和家庭成员从医疗保健提供者、老年护理机构和互联网获取健康信息。药物信息、医疗状况以及面向家庭成员的概述对参与者尤为重要。参与者认识到显示相关信息的数字仪表盘的有用性，并就该信息的呈现方式提出了建议。这包括使用大号字体、代表性颜色、符号和图表。参与者建议能够根据个人终端用户定制仪表盘。
通过让老年护理客户及其家人参与研究发现，他们对呈现临床信息且易于访问的数字仪表盘持积极态度。这样的仪表盘可以补充他们当前的信息寻求做法。然而，为使仪表盘对该人群有效，提出了一些关于其设计的建议。了解老年护理客户及其家人的信息寻求行为，以及对他们重要的信息，然后将这些信息纳入反映他们设计偏好的数字仪表盘中，可能会使该人群做出更明智的决策。
