Brammall Bonnie R, Madill Rebecca L, Garad Rhonda M, Nguyen Bao N, Nagesh Nitya, Harrison Cheryce L
Monash Centre for Health Research and Implementation, Monash University, Clayton, VIC, 3168, Australia.
Health and Social Care Unit, School of Public Health and Preventive Medicine, Monash University, Melbourne, VIC, 3004, Australia.
Res Involv Engagem. 2025 May 1;11(1):41. doi: 10.1186/s40900-025-00710-6.
Consumer and Community Involvement (CCI) in healthcare research ensures that the needs of target populations are met through active collaboration between consumers, communities, and researchers. For culturally and linguistically diverse (CALD) women in Australia, disparities in antenatal healthcare are pronounced due to barriers such as language, cultural differences, and systemic inequities. Inclusive CCI can help identify healthcare gaps and improve care. This study aimed to describe the formation of a CCI reference group using the Health in Preconception, Pregnancy, and Postpartum Alliance CCI Co-Development Framework to explore antenatal healthcare experiences and identify opportunities for improvement.
A CCI reference group of 18 CALD women was formed through purposive recruitment. Focus groups were conducted to capture their experiences with antenatal care, focusing on healthcare accessibility, cultural competency, and barriers encountered. Thematic analysis was performed using NVivo software to identify key themes related to antenatal care experiences.
Three key themes were identified from the analysis: (1) Navigating cultural beliefs and antenatal care: Women expressed challenges in reconciling traditional cultural practices with information received during antenatal care, particularly in relation to dietary modifications required for gestational diabetes management, which often conflicted with their cultural norms. (2) Social support: Many women highlighted the importance of familial and peer support during pregnancy, but some experienced isolation due to geographic separation from family. Peer networks and cultural community groups were noted as important alternative support systems. (3) Cultural competency of healthcare providers: Participants consistently reported that healthcare providers with cultural awareness and sensitivity improved their care experiences, increasing trust and satisfaction. The absence of such competency led to confusion and dissatisfaction, particularly when managing pregnancy complications.
Embedding CCI in antenatal healthcare research is essential for creating culturally competent care for CALD women. Addressing healthcare provider cultural competency, adapting health information to reflect cultural nuances, and enhancing mental health support were identified as priority areas. The findings highlight the importance of ongoing consumer engagement to achieve equitable and responsive antenatal care for CALD women in Australia.
Not applicable.
消费者与社区参与(CCI)医疗保健研究可确保通过消费者、社区和研究人员之间的积极合作来满足目标人群的需求。对于澳大利亚文化和语言背景多样(CALD)的女性而言,由于语言、文化差异和系统性不平等之类的障碍,产前保健方面的差异十分明显。包容性的消费者与社区参与有助于找出医疗保健方面的差距并改善护理。本研究旨在描述一个使用孕前、孕期和产后健康联盟消费者与社区参与共同发展框架组建的消费者与社区参与参考小组,以探讨产前保健经历并确定改进机会。
通过有目的的招募,组建了一个由18名文化和语言背景多样的女性组成的消费者与社区参与参考小组。开展了焦点小组讨论,以了解她们的产前护理经历,重点关注医疗保健的可及性、文化能力以及遇到的障碍。使用NVivo软件进行主题分析,以确定与产前护理经历相关的关键主题。
分析确定了三个关键主题:(1)协调文化信仰与产前护理:女性表示,在使传统文化习俗与产前护理期间获得的信息相协调方面存在挑战,特别是在妊娠糖尿病管理所需的饮食调整方面,这往往与她们的文化规范相冲突。(2)社会支持:许多女性强调了孕期家庭和同伴支持的重要性,但一些女性由于与家人在地理上分离而感到孤立。同伴网络和文化社区团体被视为重要的替代支持系统。(3)医疗保健提供者的文化能力:参与者一致报告说,具有文化意识和敏感性的医疗保健提供者改善了她们的护理体验,增强了信任和满意度。缺乏这种能力会导致困惑和不满,尤其是在处理妊娠并发症时。
将消费者与社区参与纳入产前保健研究对于为文化和语言背景多样的女性提供具有文化能力的护理至关重要。解决医疗保健提供者的文化能力问题、调整健康信息以反映文化细微差别以及加强心理健康支持被确定为优先领域。研究结果凸显了持续让消费者参与对于为澳大利亚文化和语言背景多样的女性提供公平且响应迅速的产前护理的重要性。
不适用。