McCormick T R, Conley B J
Dept of Medical History and Ethics, University of Washington School of Medicine, Seattle 98195-7120, USA.
West J Med. 1995 Sep;163(3):236-43.
Dying patients have much to teach us about their preferences for care. Although caring for dying patients is a major responsibility of physicians, the current curriculum in medical education emphasizes the pathophysiology and treatment of disease, with scarce time and emphasis for developing attitudes and skills essential to caring for persons in the final stage of life. Barriers to satisfactory communication may arise from either the physician or the patient, or both. Patients and physicians sometimes attach different meanings to words that are commonly used in discussing treatment. Barriers can be diminished or resolved by applying good communication skills, including attending to both verbal and nonverbal signals, exploring incongruent affect, and empathically eliciting patients' perspectives about illness, treatment plans, and end-of-life issues. The competent care of dying patients must extent beyond the management of physical symptoms because patients may experience their gravest suffering from fears and anxieties that go unaddressed in conversations with their physician. Conflicts arise when the disease progresses and the end of life approaches if the physician and patient have not reached agreement on their expectations. Physicians may initiate life-prolonging mechanisms when patients actually prefer palliative care. Patients experience a reduction in both physical and psychological aspects of suffering when physicians use good communication skills, are sensitive to patients' perspectives, and actively work to reduce barriers to mutual understanding.
濒死患者能就他们对护理的偏好给我们很多启示。尽管照料濒死患者是医生的一项主要职责,但当前医学教育课程强调疾病的病理生理学和治疗方法,而用于培养照料生命末期患者所需态度和技能的时间和精力却很少。沟通不畅的障碍可能源于医生、患者或双方。患者和医生有时对讨论治疗时常用的词汇赋予不同含义。通过运用良好的沟通技巧,包括关注言语和非言语信号、探究不一致的情感以及感同身受地引出患者对疾病、治疗计划和临终问题的看法,可以减少或消除障碍。对濒死患者的妥善护理必须超越对身体症状的管理,因为患者可能会因恐惧和焦虑而遭受最严重的痛苦,而这些在与医生的交谈中并未得到解决。如果医生和患者在期望上没有达成一致,当疾病进展且生命接近尾声时就会出现冲突。当患者实际更倾向于姑息治疗时,医生可能会启动延长生命的机制。当医生运用良好的沟通技巧、对患者的观点敏感并积极努力减少相互理解的障碍时,患者在身体和心理方面的痛苦都会减轻。