Fortune D G, Richards H L, Main C J, Griffiths C E
Section of Dermatology, University of Manchester School of Medicine, Hope Hospital, Salford, United Kingdom.
J Am Acad Dermatol. 1998 Aug;39(2 Pt 1):196-201. doi: 10.1016/s0190-9622(98)70074-x.
Patients' beliefs about their disease have been shown to be of fundamental importance in adjustment to their condition.
We investigated patients' beliefs about their psoriasis and examined the relationship between these beliefs and clinical severity, symptom report, and other clinical and demographic variables.
A total of 162 patients with psoriasis (84 male, 78 female) completed the illness perception questionnaire that provides a standardized assessment of beliefs about causes, consequences, chronicity or recurrence, controllability, and symptoms of the condition.
The most commonly reported agents of causation were stress (60.1%) and genetic factors (55.5%)--the latter group being significantly more likely to have a family history of psoriasis (P=.0001). Forty-six percent of patients believed that their behavior could improve or worsen their psoriasis, whereas 32% believed that treatment would be curative. Desquamation and pruritus were experienced "frequently" or "all the time" by 80% and 76% of patients respectively. Overall clinical severity was not associated with any of the beliefs held by patients or with symptom report.
The beliefs held and symptoms experienced by patients with psoriasis are not governed by overall clinical severity of the disease.
患者对自身疾病的信念已被证明在适应病情方面至关重要。
我们调查了患者对自身银屑病的信念,并研究了这些信念与临床严重程度、症状报告以及其他临床和人口统计学变量之间的关系。
总共162例银屑病患者(84例男性,78例女性)完成了疾病认知问卷,该问卷对有关病情的病因、后果、慢性或复发、可控性和症状的信念进行标准化评估。
最常报告的病因是压力(60.1%)和遗传因素(55.5%)——后一组有银屑病家族史的可能性显著更高(P = 0.0001)。46%的患者认为他们的行为会使银屑病改善或恶化,而32%的患者认为治疗会治愈。分别有80%和76%的患者“经常”或“一直”经历脱屑和瘙痒。总体临床严重程度与患者持有的任何信念或症状报告均无关联。
银屑病患者持有的信念和经历的症状不受疾病总体临床严重程度的支配。