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兄弟姐妹患儿童癌症的经历:家庭中一种不同的相处方式。

Siblings' experiences with childhood cancer: a different way of being in the family.

作者信息

Woodgate Roberta Lynn

机构信息

Child Health and Illness, Faculty of Nursing, Helen Glass Centre for Nursing, University of Manitoba, Winnipeg, Manitoba, Canada.

出版信息

Cancer Nurs. 2006 Sep-Oct;29(5):406-14. doi: 10.1097/00002820-200609000-00010.

Abstract

Childhood cancer and its treatment result in many challenges that impact the entire family. For siblings of children with cancer, the challenges can be particularly stressful as they often undergo tremendous change in their lives. Although there is a sound and growing body of knowledge on how siblings experience childhood cancer, there is still much to be learned. Part of a larger qualitative study aimed at detailing childhood cancer experience and its symptom trajectory from the perspective of parents, ill children, and siblings, this study aims to describe findings specific to 30 siblings who participated in the study. Siblings took part in individual interviews, focus group interviews, and participant observation. The constant comparative method of data analysis yielded the theoretical category of "ways of being in the world," which referred to the different ways that cancer impacted on the lives of children with cancer and their families. For the siblings, cancer was experienced as a different way of being within their family and involved siblings undergoing a loss of a family way of life and a loss of self within the family. Three themes related to a different way of being in the family were identified: committing to keeping my family together, being present, and enduring sadness. The findings reinforce that more needs to be done in helping healthy siblings through childhood cancer.

摘要

儿童癌症及其治疗带来了诸多挑战,影响着整个家庭。对于患癌儿童的兄弟姐妹来说,这些挑战可能压力尤其巨大,因为他们的生活常常经历巨大变化。尽管关于兄弟姐妹如何经历儿童癌症已有丰富且不断增长的知识,但仍有许多有待了解。作为一项更大规模定性研究的一部分,该研究旨在从父母、患病儿童和兄弟姐妹的角度详细描述儿童癌症经历及其症状轨迹,本研究旨在描述参与研究的30名兄弟姐妹的具体发现。兄弟姐妹参与了个人访谈、焦点小组访谈和参与观察。数据分析的持续比较方法产生了“在世界中的存在方式”这一理论类别,它指的是癌症影响患癌儿童及其家庭生活的不同方式。对于兄弟姐妹而言,癌症是在家庭中一种不同的存在方式,涉及兄弟姐妹失去一种家庭生活方式以及在家庭中的自我迷失。确定了与在家庭中不同存在方式相关的三个主题:致力于让家庭团聚、陪伴左右以及忍受悲伤。这些发现强化了在帮助健康的兄弟姐妹度过儿童癌症时期方面仍需做更多工作。

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