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一种个性化生活质量量表的使用、可行性及心理测量特性:对 SEIQoL-DW 的系统评价

The use, feasibility and psychometric properties of an individualised quality-of-life instrument: a systematic review of the SEIQoL-DW.

作者信息

Wettergren L, Kettis-Lindblad A, Sprangers M, Ring L

机构信息

Department of Neurobiology, Care Sciences and Society, Division of Nursing, Karolinska Institutet, Huddinge, Stockholm, Sweden.

出版信息

Qual Life Res. 2009 Aug;18(6):737-46. doi: 10.1007/s11136-009-9490-2. Epub 2009 Jun 3.

Abstract

PURPOSE

To review published studies regarding the use, feasibility and psychometric performance of the schedule for the evaluation of individual quality of life-direct weighting (SEIQoL-DW) in clinical research.

METHODS

Systematic literature review. Studies using the SEIQoL-DW were included if they were published in English and employed a quantitative design. A pre-defined checklist was used to analyse the reported results.

RESULTS

Thirty-nine relevant articles were identified. The SEIQoL-DW has been included in studies relating to a variety of populations, including those who are severely ill. The results of convergent and discriminant validity support our hypotheses in which SEIQoL-DW was expected to correlate moderately to high with measures of global QoL, life satisfaction and mental health and weakly with measures of functional status and health.

CONCLUSION

The SEIQoL-DW appears to be a feasible and valid instrument. The lack of association between the Index score and health, functional status, demographic and clinical parameters may be explained by the instrument's focus on global QoL and by that of the idiographic measurement approach reflecting the capacity of a patient to value domains other than health in life, despite having health problems. Nevertheless, continued psychometric evaluation in large populations with a longitudinal design is recommended.

摘要

目的

回顾已发表的关于临床研究中个体生活质量直接加权评估量表(SEIQoL-DW)的使用、可行性和心理测量性能的研究。

方法

系统文献综述。纳入使用SEIQoL-DW且以英文发表并采用定量设计的研究。使用预定义清单分析报告结果。

结果

共识别出39篇相关文章。SEIQoL-DW已被纳入涉及包括重症患者在内的各种人群的研究中。收敛效度和区分效度的结果支持了我们的假设,即预计SEIQoL-DW与总体生活质量、生活满意度和心理健康指标呈中度至高度相关,与功能状态和健康指标呈低度相关。

结论

SEIQoL-DW似乎是一种可行且有效的工具。指数得分与健康、功能状态、人口统计学和临床参数之间缺乏关联,可能是由于该工具侧重于总体生活质量,以及自陈式测量方法反映了患者在有健康问题的情况下,对生活中除健康以外其他领域进行评价的能力。尽管如此,建议采用纵向设计对大量人群继续进行心理测量评估。

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