Medical Anthropology & Sociology Unit, University of Amsterdam, Oudezijds Achterburgwal 185, 1012 DK, Amsterdam, the Netherlands.
BMC Palliat Care. 2010 Sep 10;9:19. doi: 10.1186/1472-684X-9-19.
Palliative cancer care aims to improve quality of life and ultimately quality of dying, while prolonging life is not an objective anymore when death nears. The question is, however, whether these perspectives on palliative care are congruent with the perspectives of immigrant families with a Turkish or Moroccan background.
A qualitative design was used as we were looking for the personal views of 'very ill' cancer patients with a Turkish or Moroccan background, their family members and their Dutch care providers. We interviewed 83 people, involved in 33 cases to obtain information about their views, values and norms on 'good care'.
The main concerns about 'good care' expressed by Turkish and Moroccan families were: maximum treatment and curative care until the end of their lives, never having hope taken away, devoted care by their families, avoiding shameful situations, dying with a clear mind and being buried in their own country. Their views conflict, to some extent, with the dominant principles in palliative care, for example, the emphasis on quality of life and advanced care planning, which includes discussing diagnosis and prognosis with the patient.
Patients and their families with a Turkish or Moroccan background often have different ideas about 'good care' than their Dutch care providers. As many of them are aiming at cure until the end of life, they find 'good palliative care' a contradiction in terms.
姑息治疗癌症的目的是提高生活质量，最终提高临终质量，而当死亡临近时，延长生命不再是目标。然而，问题是，这些姑息治疗观点是否与具有土耳其或摩洛哥背景的移民家庭的观点一致。
由于我们正在寻找具有土耳其或摩洛哥背景的“重病”癌症患者、他们的家庭成员和他们的荷兰护理提供者的个人观点，因此采用了定性设计。我们采访了 83 人，涉及 33 个案例，以获取有关他们对“良好护理”的看法、价值观和规范的信息。
土耳其和摩洛哥家庭对“良好护理”的主要关注是：在他们生命的最后阶段接受最大限度的治疗和治愈性护理，永远不要失去希望，得到家人的全心全意照顾，避免羞耻的情况，保持清醒的头脑并在自己的国家下葬。他们的观点在某种程度上与姑息治疗的主导原则相冲突，例如，强调生活质量和高级护理计划，其中包括与患者讨论诊断和预后。
具有土耳其或摩洛哥背景的患者及其家属对“良好护理”的看法往往与他们的荷兰护理提供者不同。由于他们中的许多人都致力于治愈直到生命的尽头，因此他们认为“良好的姑息治疗”是一种矛盾的说法。
