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痤疮特异性生活质量问卷(Acne-QoL):翻译成巴西葡萄牙语、文化调适及验证

Acne-specific quality of life questionnaire (Acne-QoL): translation, cultural adaptation and validation into Brazilian-Portuguese language.

作者信息

Kamamoto Cristhine de Souza Leão, Hassun Karime Marques, Bagatin Ediléia, Tomimori Jane

机构信息

Universidade Federal de São Paulo, Department of Dermatology, São Paulo, Brazil, MD, Dermatologist Collaborator of Department of Dermatology - Universidade Federal de São Paulo - UNIFESP, São Paulo - Brazil.

Universidade Federal de São Paulo, Department of Dermatology, São Paulo, Brazil, MD, Dermatologist of Department of Dermatology - Universidade Federal de São Paulo - UNIFESP, São Paulo - Brazil.

出版信息

An Bras Dermatol. 2014 Jan-Feb;89(1):83-90. doi: 10.1590/abd1806-4841.20142172.

Abstract

BACKGROUND

many studies about the psychosocial impact of acne have been reported in international medical literature describing quality of life as a relevant clinical outcome. It is well known that the patient's perception about the disease may be different from the physician's evaluation. Therefore, it is important to use validated instruments that turn the patient's subjective opinion into objective information.

OBJECTIVES

to translate into Brazilian-Portuguese language and to culturally adapt a quality of life questionnaire, the Acne-Specific Quality of Life Questionnaire (Acne-QoL), as well as to evaluate its reliability and validity.

METHODS

measurement properties were assessed: 1) validity: comparison between severity and Acne-QoL domain scores, correlations between acne duration and Acne-QoL domain scores, and correlation between Acne-QoL domain scores and SF-36 components; 2) internal consistency: Cronbach's α coefficient; 3) test-retest reproducibility: intraclass correlation coefficient and Wilcoxon test.

RESULTS

Eighty subjects with a mean age of 20.5 ± 4.8 years presenting mild (33.8%), moderate (36.2%) and severe (30%) facial acne were enrolled. Acne-QoL domain scores were similar among the different acne severity groups except for role-social domain. Subjects with shorter acne duration presented significant higher scores. Acne-QoL domains showed significant correlations, both between themselves and with SF-36 role-social and mental health components. Internal consistency (0.925-0.952) and test-retest reproducibility were considered acceptable (0.768-0.836).

CONCLUSIONS

the Brazilian-Portuguese version of the Acne-QoL is a reliable and valid satisfactory outcome measure to be used in facial acne studies.

摘要

背景

国际医学文献中已报道了许多关于痤疮心理社会影响的研究,这些研究将生活质量描述为一个相关的临床结果。众所周知,患者对疾病的认知可能与医生的评估不同。因此,使用经过验证的工具将患者的主观意见转化为客观信息非常重要。

目的

将生活质量问卷《痤疮特异性生活质量问卷》(Acne-QoL)翻译成巴西葡萄牙语并进行文化调适,同时评估其信度和效度。

方法

评估测量特性:1)效度:严重程度与Acne-QoL领域得分之间的比较、痤疮持续时间与Acne-QoL领域得分之间的相关性以及Acne-QoL领域得分与SF-36分量表之间的相关性;2)内部一致性:Cronbach's α系数;3)重测信度:组内相关系数和Wilcoxon检验。

结果

纳入了80名平均年龄为20.5±4.8岁的受试者,他们面部痤疮的程度分别为轻度(33.8%)、中度(36.2%)和重度(30%)。除角色-社会领域外,不同痤疮严重程度组的Acne-QoL领域得分相似。痤疮持续时间较短的受试者得分显著更高。Acne-QoL各领域之间以及与SF-36角色-社会和心理健康分量表之间均显示出显著相关性。内部一致性(0.925 - 0.952)和重测信度被认为是可接受的(0.768 - 0.836)。

结论

巴西葡萄牙语版的Acne-QoL是一种可靠且有效的令人满意的结局测量工具,可用于面部痤疮研究。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/2681/3938358/55dc02c2ceca/abd-89-01-0083-g01.jpg

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