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为非裔美国人社区组织开展临床试验教育项目的合作开发。

Collaborative development of clinical trials education programs for African-American community-based organizations.

作者信息

Blakeney Natasha, Michaels Margo, Green Melissa, Richmond Alan, Long Debra, Robinson William S, Spicer Carmelita, Elliott-Bynum Sharon, Corbie-Smith Giselle

机构信息

Education Network to Advance Cancer Clinical Trials, 7625 Wisconsin Avenue Suite 300, Bethesda, MD, 20814, USA.

出版信息

J Cancer Educ. 2015 Jun;30(2):400-6. doi: 10.1007/s13187-014-0673-3.

DOI:10.1007/s13187-014-0673-3
PMID:24906502
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC4446971/
Abstract

This paper describes the use of a unique "Learning and Feedbackˮ approach to customize cancer clinical trials education programs for Community Bridges, a peer training intervention designed for African-American communities in North Carolina. Generic community education modules were demonstrated with key community leaders who were designated as trainers. Quantitative and qualitative assessments were provided on understanding of content, comfort with material, and cultural relevance. The generic materials were adapted into three revised modules, all featuring key messages about cancer clinical trials, discussion regarding distrust of medical research, common misconceptions about trials, patient protections, and a call to action to prompt increased inquiry about locally available trials. The revised modules were then used as part of a train-the-trainer program with 12 African-American community leaders. ENACCT's use of the Learning and Feedback process is an innovative method for culturally adapting clinical trials education.

摘要

本文介绍了一种独特的“学习与反馈”方法,用于为“社区桥梁”定制癌症临床试验教育项目,“社区桥梁”是为北卡罗来纳州非裔美国人社区设计的同伴培训干预措施。向被指定为培训师的关键社区领袖展示了通用社区教育模块。提供了关于内容理解、对材料的舒适度以及文化相关性的定量和定性评估。通用材料被改编为三个修订模块,所有模块都突出了关于癌症临床试验的关键信息、对医学研究不信任的讨论、对试验的常见误解、患者保护以及呼吁采取行动以促使对当地可用试验进行更多询问。然后,修订后的模块被用作针对12名非裔美国社区领袖的培训师培训项目的一部分。ENACCT对学习与反馈过程的运用是一种在文化上调整临床试验教育的创新方法。

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本文引用的文献

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Assessing an intervention to improve clinical trial perceptions among predominately African-American communities in South Carolina.评估一项旨在改善南卡罗来纳州以非裔美国人为主的社区对临床试验看法的干预措施。
Prog Community Health Partnersh. 2012 Fall;6(3):249-63. doi: 10.1353/cpr.2012.0038.
2
"The promise of community-based advocacy and education efforts for increasing cancer clinical trials accrual".基于社区的宣传和教育努力对增加癌症临床试验入组率的前景
J Cancer Educ. 2012 Mar;27(1):67-74. doi: 10.1007/s13187-011-0271-6.
3
Assessing the awareness of and willingness to participate in cancer clinical trials among immigrant Latinos.评估移民拉丁裔人群对癌症临床试验的认知和参与意愿。
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Attitudes, knowledge and barriers to participation in cancer clinical trials among rural and remote patients.农村和偏远地区患者参与癌症临床试验的态度、知识及障碍
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Training community health workers about cancer clinical trials.培训社区卫生工作者了解癌症临床试验。
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J Community Health. 2010 Aug;35(4):417-22. doi: 10.1007/s10900-010-9267-0.
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Predictors of awareness of clinical trials and feelings about the use of medical information for research in a nationally representative US sample.一项全国代表性美国样本中临床试验知晓情况和对使用医疗信息进行研究的感受的预测因素。
Ethn Health. 2010 Jun;15(3):223-36. doi: 10.1080/13557851003624281.
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Adapting a program to inform African American and Hispanic American women about cancer clinical trials.调整一个项目,以告知非裔美国女性和西班牙裔美国女性有关癌症临床试验的信息。
J Cancer Educ. 2010 Jun;25(2):142-5. doi: 10.1007/s13187-009-0032-y.
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The role of race and trust in tissue/blood donation for genetic research.种族和信任在遗传研究中的组织/血液捐赠中的作用。
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