Kadhel Philippe, Schuster Caroline, Grossat Nathalie, Janky Eustase, Ghassani Ali
Centre Hospitalier et Universitaire de Pointe-à-Pitre/Abymes, Pôle Parent-Enfant, Service de Gynécologie et Obstétrique, Route de Chauvel, BP 465, 97159, Pointe-à-Pitre cedex, Guadeloupe, France.
Institut national de la santé et de la Recherche médicale (Inserm) U1085 - IRSET, Université des Antilles et de la Guyane, Campus de Fouillole, 97110, Pointe-à-Pitre, Guadeloupe, France.
J Cancer Educ. 2018 Apr;33(2):317-320. doi: 10.1007/s13187-016-1096-0.
Patients frequently ask about the cause of their breast cancer. To answer, physicians refer to breast cancer risk factors based on medical reports. We aim to assess these risk factors for the point of view of survivors, a point of view which seems to differ from that of medical references. We ran a survey with open- and closed-ended questionnaires on patients' opinions about risks factors both for women in general and for their own case. We also collected data on their sources of information on this subject. Most patients had no opinion. The most frequently cited risk factors were stress, then genetic causes, and poor diet. Internet was the leading source of information for patients, followed by physicians and magazines. Our study highlights the mismatch between breast cancer risk factors as perceived by scientists and by survivors. Survivors tend to focus on non-controllable risk factors. Taking into account attribution theories of life events, an awareness of patient opinion may be valuable for psychological support of survivors, and it may be informative to record the way in which patients attribute causality for life events such as breast cancer and, more generally, all type of cancer.
患者经常询问自己患乳腺癌的原因。为了回答这个问题,医生会参考基于医学报告的乳腺癌风险因素。我们旨在从幸存者的角度评估这些风险因素,而这一角度似乎与医学参考文献中的观点有所不同。我们针对患者对一般女性以及她们自身情况的风险因素的看法,开展了一项包含开放式和封闭式问卷的调查。我们还收集了她们关于这一主题的信息来源的数据。大多数患者没有看法。最常被提及的风险因素是压力,其次是遗传原因和不良饮食。互联网是患者获取信息的主要来源,其次是医生和杂志。我们的研究凸显了科学家所认知的乳腺癌风险因素与幸存者所认知的之间的差异。幸存者往往关注不可控的风险因素。考虑到生活事件的归因理论,了解患者的看法对于为幸存者提供心理支持可能很有价值,记录患者对诸如乳腺癌以及更普遍的所有类型癌症等生活事件的因果归因方式可能会提供很多信息。