Centre for Social Research in Health, Faculty of Arts, Design and Architecture, University of New South Wales, Sydney, New South Wales, Australia.
Social Policy Research Centre, Faculty of Arts, Design and Architecture, University of New South Wales, Sydney, New South Wales, Australia.
Health Soc Care Community. 2022 Nov;30(6):e5602-e5611. doi: 10.1111/hsc.13986. Epub 2022 Sep 6.
Chinese immigrants in Australia are overrepresented among people with chronic hepatitis B virus (PWCHB) but experience poor access to healthcare. Given the historical discriminatory policies against PWCHB in mainland China, this study aimed to explore the lived experiences of stigma and discrimination surrounding hepatitis B virus (HBV) among Chinese immigrants originally from mainland China. Semi-structured in-depth interviews were conducted by a researcher with a Chinese background in 2019-2020. Sixteen Chinese immigrants living with HBV were recruited across Sydney and Melbourne through advocacy and support groups. This study is positioned in social constructionism. Data analysis was informed by the Health Stigma and Discrimination Framework that highlights the interaction between layered stigmas. This study revealed the historical, social and cultural construction of HBV-related stigma among PWCHB and demonstrated how this stigma was manifested across socioecological levels in China and Australia. Findings show that HBV-related stigma has mostly been driven by knowledge deficits about HBV and fear of HBV infection. HBV-related stigma was mostly demonstrated around social isolation including isolation imposed by family and the community and employment restrictions in the Chinese workplace. In the Australian context, HBV-related stigma was related to the ethnic and cultural background of PWCHB, and primarily occurred as anticipated stigma in the community and in employment. The findings provide significant insights for crosscutting research and policy endeavours to develop and test cross-disciplinary initiatives that more broadly address the complex lived realities of Chinese immigrants living with hepatitis B virus.
澳大利亚的中文移民在慢性乙型肝炎病毒 (PWCHB) 患者中所占比例过高,但获得医疗保健的机会很差。鉴于中国大陆历史上针对 PWCHB 的歧视性政策,本研究旨在探索来自中国大陆的中文移民在乙型肝炎病毒 (HBV) 周围经历的污名化和歧视的生活体验。2019 年至 2020 年,一位具有中文背景的研究人员通过宣传和支持团体在悉尼和墨尔本招募了 16 名患有 HBV 的中文移民进行半结构化深入访谈。本研究定位在社会建构主义中。数据分析受到健康污名和歧视框架的启发,该框架强调了分层污名之间的相互作用。本研究揭示了 PWCHB 中与 HBV 相关的污名的历史、社会和文化构建,并展示了这种污名如何在中国和澳大利亚跨越社会生态层面表现出来。研究结果表明,与 HBV 相关的污名主要是由于对 HBV 的知识不足和对 HBV 感染的恐惧。与 HBV 相关的污名主要表现在社会隔离方面,包括家庭和社区的隔离以及中国工作场所的就业限制。在澳大利亚背景下,与 HBV 相关的污名与 PWCHB 的种族和文化背景有关,主要发生在社区和就业中的预期污名中。这些发现为跨学科研究和政策努力提供了重要见解,以制定和测试更广泛地解决患有乙型肝炎病毒的中文移民复杂生活现实的跨学科举措。